The Relationship between Burden of Care and Burnout in Family Caregivers of People with Dementia

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Reynerly Wijaya
Lie Fun Fun


Individuals with dementia (IWD) need a caregiver, usually their own family, to take care of them. Family caregiver often have others role beside being a caregiver. Therefore, family caregiver will involve in many high pressure situation, which can be perceive as burden of care. Burden of care can be a risk of burnout. This research used burden of care theory by Zarit (1986) and burnout theory  by Maslach (2003).
Sample in this research are 40 IWD’s  family caregiver in Alzheimer Community. This sample collected using purposive sampling technique. The research instruments were MBI-HSS questionnaire (validity: 0.364-0.832; reliability: 0.91) and ZBI-12 questionnaire (validity: 0.325-0.905; reliability: 0.926). The two questionnaires were modified to fit the participant’s characteristics. Both questionnaires were correlated using correlation test of spearman’s rho with  SPSS 23 to find out the relationship between burden of care and burnout.
Based on this test, correlation coefficient score of 0.899 with p=0.00 was achieved. This result shows that there is a significant positive correlation between burden of care and burnout experienced by the family caregiver in the Alzheimer Community. In this research, sex was the only sociodemography variable that correlated with burnout.


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Wijaya, R., & Fun Fun, L. (2022). The Relationship between Burden of Care and Burnout in Family Caregivers of People with Dementia. Humanitas (Jurnal Psikologi), 6(1), 49–62.


Alves, L. e. (2019). Burnout Syndrome in Informal Caregivers of Older Adults with Dementia. Dement Neuropsychol, 13(4), 415-421. Doi:

Alwi, Idrus. (2015). Kriteria Empirik dalam Menentukan Ukuran Sampel Pada Pengujian Hipotesis Statistika dan Analisis Butir. Jurnal Formatif, 2(2): 140- 148.

Bédard, M., et al. (2001). The Zarit Burden Interview. The Gerontologist, 41(5), 652-657. Doi: 10.1093/geront/41.5.652

Brodaty, H., & Marika D. (2009). Family Caregivers of People with Dementia. Dialogues Clin Neurosci, 11(2), 217-228. doi:10.31887/DCNS.2009.11.2/hbrodaty

Bursack, Carol B. (19 Juni 2020). How to Cope With Alzheimer’s Caregiver Burnout. Retrieved from AgingCare: ( diakses 23 Mei 2021

Carretro, S., & et al. (2009). The Informal Caregiver's Burden of Dependent People: Theory and Empirical Review. Archives of Gerantology and Geriatrics, 49, 74-79. DOI: 10.1016/j.archger.2008.05.004

Choi, J & Sohyune R. S. (2012). Relationships Among Familly Support, Health Status, Burnout, and the Burden of the Family Caregiver Caring for Korean Older Adults. Journal of Hospice & Palliative Nursing, 14(8): 1-8. DOI:10.1097/NJH.0b013e31826bfb4c

Cornu, M. (2019). Caregivers of Parents With Alzheimer's Disease: Quality of Life For Caregivers: Perspectives & Family Dynamics. University of Kentucky, Master of Science in Family Sciences in the College of Agriculture, Food and Environment. Kentucky: University of Kentucky.

Crist, Janice D., et al. (2009). Caregiving Burden, Acculturation, Familism, and Mexican American Elders’ Use of Home Care Services. Res Theory Nurs Pract, 23(3), 165-180.

Diameta et al. The Burden Experience of Formal and Informal Caregivers of Older Adults With Hip Fracture in Nigeria. Sage open nursing, (4) 1-10. DOI: 10.1177/2377960818785155

Egici, M. T., et al. (2019). Care Burden and Burnout Status of Caregivers Whose Patient are Treated in Palliative Care Centers. Jaren, 5(2): 123-131. DOI:10.5222/jaren.2019.38247

Eliyana. (2015). Faktor-Faktor yang Berhubungan dengan Burnout Perawat Pelaksana di Ruang Rawat Inap RSJ Provinsi Kalimantan Barat Tahun 2015. Jurnal ARSI, 2(3): 172-182

Gérain, P., & Zech, E. (2019). Informal Caregiver Burnout? Development of A Theoretical Framework to Understand the Impact of Caregiving. Frontiers in Psychology, 10, -. Doi:

Graziano, A. M., Michael L. R. (2012). Research Methods: A Process of Inquiry. 8th Edition. America: Pearson.

Heerema, Esther. (2020) Dementia Effects on Activities of Daily Living (ADLs). ( diunduh pada Oktober 2020.

Haejung, L., & Jagdip Singh. (2010). Appraisals, Burnout and Outcomes in Informal Caregiving. Asian Nursing Research, 4, 32-44. DOI: 10.1016/S1976-1317(10)60004-7

Indilusiantari, Vera & Inggit. (2015). Faktor-Faktor yang Berhubungan dengan Burnout Syndrome Pada Pegawai di Direktorat Bina Kesehatan Kerja dan Olahraga Kementerian Kesehatan Republik Indonesia Jakarta Selatan Tahun 2015. Jurnla Ilmiah Kesehatan, 7(1), 28-33.

James, Nicholas. (2020). “Rethinking Burnout in Informal Caregivers: Development and Validation of The Informal Caregiver Burnout Inventory-10 Item Form” (Skripsi). University of Central Florida.

Llorent V.J., & Inmaculada, R. (2016). Burnout and Its Relation to Sociodemographic Variables among Education Professionals Working with People with Disabulities in Córdoba (Spain). Ciência & Saúde Coletiva, 21(10): 3287-3295

M.d.C. Pérez-Fuentes, e. a. (2016). Inventory of Overburden in Alzheimer's Patient Family Caregivers with no Specialized Training. International Journal of Clinical and Health Psychology(17), 56-64.

Maslach, C. (1998). A Multidimensional Theory of Burnout. (C. L. Cooper, Ed.) Theories of Organizational Stress, 68-85.

Maslach, C. (2003). Burnout: The Cost of Caring. America: Prentice-Hall.

Massinger-Rapport, et al. (2006). Impact of Dementia Caregiving on the Caregiver in the Continuum of Care. Annals of Long Term Care, (14):1

Mediani, Mesha. (2017). ( diakses 8 Oktober 2020

Merlo, E. M., et al. (2020). Compassion and Suppression in Caregivers: Twin Masks of Tragedy and Joy of Caring. Journal of Mind and Medical Sciences, 7(1): 61-68. Doi: 10.22543/7674.71.P6168

Naing, M., Min, H., & Sein, Y. (2020). Caregiver Burden from Caring for Dependent Elder in Yangon, The Republic of The Union of Myanmar. Makara Journal of Health Research, 24, 13-20. Doi:

Putra, Muhammad F. S. & Nasruddin Noor. (2020). Clinical Description of Dementia Patients Concerned by Acetylcholinesterase Inhibitor and Other Drugs in Dr. Soeharto Heerdjan Psychiatry Hospital. Yarsi Journal of Pharmacology, 1 (1), 22-31.

Pyke, Karen D. & Vern L. Bengston. (1996). Caring More of Less: Individualistic and Collectivist Systems of Family Eldercare. Journal of Marriage and The Family, 58(2), 379-392.

Raccichini, Alessandra, et al. (2009). The Caregiver’s Burden of Alzheimer Patients: Differences Between Live In and Non-Live-In. American Journal of Alzheimer’s Disease & Other Dementias, (24)5, 377-383. Doi: 10.1177/1533317509340025

Revenson, et al. (2016). Caregiving in The Illness Context. New York: Palgrave Macmillan.

Robinson, B. (18 November 2020). The Suprising Difference Between Stress and Burnout. Retrieved from Psychology Today: ( diunduh pada April 2021

Santrock, John W. (2011). Life Span Development 13th Edition. New York: McGraw Hill

Schulz, R., & Paula R. S. (2009). Physical and Mental Health Effects of Family Caregiving. Am J Nurs, 108, 23-27. Doi: 10.1097/01.NAJ.0000336406.45248.4c

Smith, M. (2020, Oktober 1). Burnout Prevention and Treatment. (,%2C%20they'll%20feel%20better), diunduh pada April 2021

Szlenk-Czyczerska, E., et al. (2020). Needs, Aggravation, and Degree of Burnout in Informal Caregivers of Patients with Chronic Cardiovascular Disease. International Journal of Environmental Research and Public Health, 17: 1-16. Doi: 10.3390/ijerph17176427

Truzzi, Annibal. (2008). Burnout in a Sample of Alzheimer's Disease Caregivers in Brazil. Eur. J. Psychiat, 151-160. ISSN 0213-6163

Valois, L., & Galvin, J. E. (2014). The Role of The Family in The Care and Management of Patients with Dementia. (D. In B, & A. A, Eds.) Dementia: Comprehensive Principles and Practices, 609-621.

White, C. L. (2018). Advancing Care for Family Caregivers of Persons with Dementia through Caregiver and Community Partnerships. Research Involvement and Engagement, 4 (1), 1-7. DOI 10.1186/s40900-018-0084-4

Widiastuti, R., et al. (2019). Beban dan Koping Caregiver Lansia Demensia di Panti Wredha. Jurnal Ilmu Keperawatan Komunitas, 2(1), 8-18.

Widyastuti, Rita., et al. (2019). Merawat Lansia Dengan Demensia: Perspektif Dari Pengasuh Lansia di Panti Wreda.

Winta, Mulya V. I. (2015). Pengaruh Psikoedukasi Manajemen Burnout Terhadap Strategi Koping Pada Ibu Asuh Sebagai Caregiver Di SOS Children’s Viilage Semarang. J. Dinamika Sosbud, 17(2): 285-291.

World Health Organization. (2015). Supporting Informal Caregivers Of People Living With Dementia. Geneva: World Health Organization.

Yates, M., Tennstedt, S., & Chang, B. (1999). Contributors to and Mediators of Psychological Well-Being for Informal Caregivers. The Journals of Gerontology Series B: Psychological Sciences and Social Sciences, 52B, 12-22.

Y?ld?zhan, E., Ören, N., Erdo?an, A., & Bal, F. (2018). The Burden of Care and Burnour in Individuals Caring for Patients with Alzheimer's Disease. Community Mental Health Journal, -. DOI: 10.1007/s10597-018-0276-2

Zarei, Ehsan., et al. (2019). Pravalence of Burnout among Primary Health Care Staff and Its Predictors: A Study in Iran. International Journal of Environmental Research and Public Health, (16):1-10. doi:10.3390/ijerph16122249

Zarit, S. H., Pamela A. Todd, & Judy M. (1986). Subjective Burden of Husbands and Wives as Caregivers: A Longitudinal Study. The Gerontologist, 260-266